ABOUT THE BOOK

Disjointed is for patients with hEDS/HSD and the physicians who treat them. hEDS/HSD is an under recognized, complex, multisystemic disorder, with the silos of healthcare's specialties often working against effective and efficient treatment. With 21 specialist and resource chapters, Disjointed brings together physician, patient, and parent perspectives to support the goal of earlier and more complete intervention.  Learn more>>